What is CF

Here’s how I’ll break down CF (Cystic Fibrosis) for you:

It is an inherited disease that affects the lungs and digestive system.

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About 30,000 people in the U.S. have CF.

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A defective gene causes the body to produce thick mucus that gets stuck, clogs the lungs and causes infections.

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It also makes it difficult for us to break down and absorb food, making it hard to gain weight – no matter how much we eat.

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In the 1950s, CFers rarely lived past their teen years.

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Now, we live into our 30s, 40s and 50s.

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There is no cure for CF.

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Fun fact. We have extra salty skin.

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Our days are filled with breathing treatments, popping pills and hopefully exercise.

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It’s very common for someone with CF to get a double lung transplant. This does not “cure” CF, but these new lungs should stay clear and healthy. However, the life expectancy after a transplant is only 5-10 years. It’s possible to get a second transplant, but it gets complicated.

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