Here’s how I’ll break down CF (Cystic Fibrosis) for you:
It is an inherited disease that affects the lungs and digestive system.
About 30,000 people in the U.S. have CF.
A defective gene causes the body to produce thick mucus that gets stuck, clogs the lungs and causes infections.
It also makes it difficult for us to break down and absorb food, making it hard to gain weight – no matter how much we eat.
In the 1950s, CFers rarely lived past their teen years.
Now, we live into our 30s, 40s and 50s.
There is no cure for CF.
Fun fact. We have extra salty skin.
Our days are filled with breathing treatments, popping pills and hopefully exercise.
It’s very common for someone with CF to get a double lung transplant. This does not “cure” CF, but these new lungs should stay clear and healthy. However, the life expectancy after a transplant is only 5-10 years. It’s possible to get a second transplant, but it gets complicated.
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